SPINA BIFIDA AND HYDROCEPHALUS ASSOCIATION OF NORTHERN ALBERTA
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Mission Statement
The Spina Bifida and Hydrocephalus Association of Northern Alberta (SBHANA) is a non-profit organization dedicated to providing support, resources, and advocacy for individuals and families affected by spina bifida and hydrocephalus in the Northern Alberta region. SBHANA aims to enhance the quality of life for those with these conditions by promoting awareness, education, and social inclusion. Mission and Objectives: • Mission: To improve the lives of individuals living with spina bifida and hydrocephalus through support, education, and advocacy. Objectives: • Provide a support network for individuals with spina bifida and hydrocephalus and their families. • Promote public awareness and understanding of these conditions. • Advocate for improved access to healthcare, education, and other essential services. • Organize educational events and workshops to empower affected individuals and families. • Foster social integration and community engagement.
About This Cause
The Spina Bifida and Hydrocephalus Association of Northern Alberta (SBHANA) supports individuals living with spina bifida, hydrocephalus, and related disabilities in various ways to enhance their quality of life, promote inclusion, and provide necessary resources. Here are some examples on how SBHANA Support Fund assists individuals with disabilities and their families: 1. Medical Support: SBHANA helps with medical expenses, consultations, and access to specialists who understand the unique needs of individuals with spina bifida and hydrocephalus. 2. Educational Initiatives: The organization provides information, resources, and support to help individuals with disabilities access appropriate educational opportunities, accommodations, and advocacy. 3. Adaptive Sports and Recreation: SBHANA assists members with the cost of participating in organized adaptive sports programs, recreational activities, and camps tailored to the abilities of individuals with spina bifida and hydrocephalus. 4. Equipment and Assistive Devices: SBHANA assists funding for individuals to obtain necessary equipment, assistive devices, and technologies that enhance independence and mobility. 5. Emotional and Psychological Support: SBHANA assists with funding for counseling, therapy, and mental health resources that can help individuals and families navigate the emotional challenges associated with disabilities. 6. Education and Awareness Campaigns: The SBHANA engages in public awareness campaigns to educate the community about spina bifida, hydrocephalus, and related disabilities, aiming to reduce stigma and misconceptions. 7. Scholarships and Educational Support: SBHANA offers scholarships or financial assistance for pursuing higher education or vocational training. 8. Transition to Adulthood: SBHANA offers support during the transition from adolescence to adulthood, including guidance on education, employment, independent living, and healthcare. 9. Caregiver Support: Recognizing the role of caregivers, SBHANA provides resources to assist them in caring for individuals with disabilities. 10. Collaboration with Healthcare Professionals: Collaborating with healthcare providers to ensure a holistic approach to care, addressing medical, emotional, and social needs. 11. Support Groups and Networking: SBHANA offers support groups, workshops, and social events can help individuals connect with others who share similar experiences and provide a sense of community. 12. Accessibility and Advocacy: The SBHANA assists with advocating for accessibility improvements in public spaces, transportation, and other areas to ensure individuals with disabilities can fully participate in society. The SBHANA has been supporting people affected by spina bifida and/or hydrocephalus for over 40 years.