The Stevie Fever for ALS Foundation
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Mission Statement
The Stevie Fever For ALS Foundation is a registered Canadian charity that aims to raise awareness and funds for lifesaving ALS research through various events and efforts.
About This Cause
Making ALS livable means finding new treatments, holding clinical trials for new drugs, and ramping up ALS research to help people living with ALS NOW. Donations WILL lead to better care, longer lives, and a possible cure. How powerful is that? ALS research and patient care are incredibly underfunded in comparison to other diseases. In 2014 the ice bucket challenge raised around $200 million globally. We would have to do 50 of those globally every year to reach cancer's annual funding. ALS is a horrible disease that hits people in their prime out of nowhere, and it isn't exclusive to any gender or group. Researchers still do not know what causes ALS and why some people get it, and some don't. It remains a fatal disease with rapidly progressing, debilitating effects from diagnosis. Although it is a rare disease, ALS can one day be a treatable, non-terminal disease with enough awareness and funds to aid research. The Stevie Fever For ALS Foundation plans to be a part of that journey. ALS (amyotrophic lateral sclerosis) is a neurodegenerative disease where the nerve cells that control your muscles die. The ‘living wires’ that connect your brain to your muscles degenerate, leading to a loss of mobility, loss of speech and eventually impact the ability to breathe. This is a terminal disease. ALS does not have a cure or an effective treatment.