Aplastic Anemia and Myelodysplasia Association of Canada/Association canadienne de l'anémie aplasique et de la myélodysplasie
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Mission Statement
Our mission is to provide a seamless support network for every Canadian patient, family member, friend, and concerned healthcare provider dealing with aplastic anemia (AA), myelodysplasia (MDS) and paroxysmal nocturnal hemoglobinuria (PNH). We provide patient support through diagnosis, treatment and remission stages of these diseases
About This Cause
AAMAC was founded by a concerned parent whose child had AA, and was federally incorporated and registered (nationally) as a not-for-profit charity in 1987. One of the first goals of this new non-profit was to advocate for the formation of a national bone marrow donor registry in Canada to assist in the identification of a life saving bone marrow match for the patients that we represent. Currently, we provide coast-to-coast support through: Telephone support; Nurses education program; Quarterly newsletter; Conferences & seminars; Grants for medical research; Patient Support Meetings; Educational material; Peer to peer support. AAMAC offers monthly virtual Patient & Caregiver Support Groups across Canada: * Western Canada - Alberta,BC, Saskatchewan &Manitoba * Central Canada - Saskatchewan, Manitoba, Ontario & Quebec * Atlantic Canada - Nova Scotia, New Brunswick, Newfoundland & Labrador & Prince Edward Island * French Speaking - all French speaking Canadians AAMAC also hosts several webinars a year on subjects that are of interest to patients, their family and caregivers, and health professionals dealing with AA, MDS and PNH. We have restarted meeting in-person as well, details of which are on our webiste. All meetings are offered free of charge to patients, support persons and healthcare providers.