ONTARIO RETT SYNDROME ASSOCIATION
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Mission Statement
The Ontario Rett Syndrome Association of Canada (ORSA Canada) exists to ensure that children and adults with Rett syndrome are enabled to achieve their full potential and enjoy the highest quality of life within their community.
About This Cause
The Ontario Rett Syndrome Association of Canada (ORSA Canada) is a volunteer, not-for-profit charity for parents, caregivers, researchers, medical professionals and other interested support agencies and individuals. ORSA Canada became incorporated in 1991. Its Board of Directors is comprised of parents and caring citizens. ORSA Canada provides information through a website, a newsletter and conferences. Support is provided to families regionally. The association funds Canadian research projects, Rett Syndrome Clinics, a resource centre and developed the Canadian Rett Syndrome Registry. ORSA Canada advocates to the needs of individuals with Rett syndrome and their families provincially and nationally.