The Illness Challenge Foundation
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Mission Statement
The Beijing Illness Challenge Foundation (ICF) is the very first public welfare foundation in Beijing focusing on the field of rare diseases. ICF is devoted to solving urgent matters faced by the rare disease community through community services, nonprofit sector development, social advocacy, and eventually creating an equal and respectful environment for the community challenged by illness in the society. The Foundation is inspired by “the Ice Bucket Challenge” and founded on 29th February 2016, the International Rare Disease Day.
About This Cause
ICF is committed to support patient organizations that focus on medical treatment and rehabilitation as well as promoting policy and rights advocacy activities for rare diseases. It aims to establish platforms which involve participation from multiple actors and agencies, create signature projects that the public feel strong connections with, promote for a better social welfare coverage for rare diseases, and solve urgent matters faced by the rare disease community, including medical treatment and rehabilitation, education, employment, and social inclusion. The ultimate goal is to create a supportive and respectful environment for every person no matter what disease or challenge they have to suffer or face. Hence creating a fair, righteous, and inclusive society. Vision: Create an equal and respectful social environment for the community challenged by illness. Mission: Through developing communities, establishing platforms, and cooperating with multiple resources and actors to solve urgent matters faced by the rare disease community. Slogan: Born to Challenge Working Projects 1.Community Services Issues related to rare disease are threatening humanity’s health and quality of life. Many families which are seeking medical help fall into desperate rock bottoms. ICF hopes to mobilize resources, with corporation from partner agencies, and to provide medical support and “Holistic Approach” assistance in order to improve patients’ quality of life. 2.Industry Support ICF firmly believes that the rare decease patients are the key to unlocking and solving problems. Engaging in the complicated Chinese medical system and social environment, ICF respects and supports the subjectivity and voices of rare disease community and patient organizations. ICF provides assistance and support in funding, capacity building, data and information management, and cutting-edge tools by coordinating with patient organizations, medical professionals and institutions, corporates, media, and other stakeholders. ICF aspires to collaborate with stakeholders step by step, so that an institutional support for the rare disease community would be created. 3.Social Advocacy Along with rare disease community, organizations, media, and partner institutions, ICF has engaged with the public in activities such as “the Ice Bucket Challenge” to advocate for rare disease patients. ICF also shares patients’ stories with the public via videos, illustrations and comics. Through regular survey studies on patients and motivating the patient community to speak out, ICF creates opportunities for the public to learn more about rare diseases and to see the real images of patients with rare diseases, so that misunderstandings, bias and prejudices toward them will be eliminated. Last but not least, ICF also aims to bring changes in policies and the social welfare system and to create an inclusive, equal and respectful social environment for all parties.