Angelman Syndrome Ireland Limited
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Mission Statement
Angelman Syndrome Ireland, is a non-profit charity established in 2011 to provide support and information about this rare neuro-genetic disorder of chromosome 15 which results in severe developmental delay, lack of speech and epilepsy. ASI is working with families, caregivers, service providers and medical professionals who care for, or provide support to, those living with Angelman Syndrome. Its aims are - to raise awareness of and understanding of this condition in Ireland; to create a formal support network for families, caregivers and service providers throughout Ireland offering practical and emotional support; to promote and support research into Angelman Syndrome and treatment of its cognitive, motor and epileptic symptoms, and to keep interested parties informed of developments in clinical research at home and abroad.
About This Cause
Angelman Syndrome Ireland is a charitable organization dedicated to supporting individuals and families affected by Angelman syndrome in Ireland. Angelman syndrome is a rare neuro-genetic disorder that primarily affects the nervous system, causing developmental delays, intellectual disabilities, speech impairments, and movement issues. Individuals with AS will require life long care, complex medical treatment, which can have a significant impact on the quality of life of parents and care givers. The primary mission of Angelman Syndrome Ireland is to provide support, resources, and advocacy for individuals with Angelman syndrome and their families. This support often includes information about the condition, access to specialists and therapies, educational resources, and emotional support for families navigating the challenges associated with Angelman syndrome. The organization may also engage in fundraising activities to support research into treatments and interventions for Angelman syndrome, as well as to raise awareness about the condition within the broader community. Additionally, they may organize events and gatherings to facilitate connections among families affected by Angelman syndrome, providing them with opportunities to share experiences and strategies for coping with the condition. Overall, Angelman Syndrome Ireland plays a crucial role in enhancing the quality of life for individuals with Angelman syndrome and their families by providing them with essential support, resources, and advocacy. An updated charity board was established January 2024 with a renewed mission to increase the awareness, parental support and diagnosis rates of Angelman Syndrome in Ireland.