Cork Spina Bifida And Hydrocephalus Association
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Mission Statement
Completely voluntary Association
About This Cause
Cork Spina Bifida and Hydrocephalus Association is a small local association looking after members in Cork, and the surrounding area. We have over 100 members and our numbers are growing. 9 children are born in Cork every year with Spina Bifida. It is a life changing event that can effect some or all bodily functions. Some years those figures change upwards. We are a COMPLETELY VOLUNTARY organisation. We are parents of children with the disability or members with Spina Bifida. We look after members financially, with helping towards costs they include trips to hospitals, adaptions to their homes, equipment to attend college and school, a contribution towards respite, a Christmas party and summer party offering a chance to get together and make friends. Isolation is a factor when you are dealing with a disability both for the families and person living with spina bifida. A death grant is available to support families suffering financial and emotional hardship and much more (we lost four members in 2020 alone). This year we are planning to include more social support especially to new parents.