Irish Motor Neurone Disease Association
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Mission Statement
The IMNDA is dedicated to providing care for people with Motor Neurone Disease, their carers and families as well supporting research into the causes and treatments of MND.
About This Cause
The Irish Motor Neurone Disease Association is the primary support organisation in Ireland providing care for people with Motor Neurone Disease, their families, friends and carers. Our key services include home visiting by an MND dedicated nurse, financial assistance towards home care help and the provision of specialist medical equipment and appliances on loan free of charge to our clients. The Association also supports research into the causes and treatment of the disease through specific financial bursaries. The cornerstone of the IMNDA's approach is to put people with MND at the heart of all its focus, to champion their voice and dignity, to provide information resources and support so as to empower them to make informed decisions for themselves as individuals, whilst also providing every possible support to their families and carers. Since its foundation, the Association has developed specialist, individulaised, services that reflect the needs of the Irish MND community. Our ethos is to ensure rapid access to these vital services for all of our clients regardless of their location or means. Provision of the specialist medical equipment and aids to people with MND plays a vital role in improving their quality of life, enabling them to live as active, independent citizens within their community and to remain in their home with their families for as long as possible. We support over a quarter of our members financially with a home help supplement so that they obtain additional hours of home help to that offered by their community, which is vital to their well-being, care and dignity. Our dedicated Nurse works remotely providing expert one on one advice during home visits as well as educating community teams, whilst the Association also funds counselling for those living with the disease. Motor Neurone Disease is an incurable neurological condition that leaves people unable to do the everyday things in life that the rest of us take for granted. Walking, talking and swallowing may become virtually impossible, yet the mind and the senses remain intact in the majority of cases. It is a degenerative life limiting disease with the rate of progression varying greatly from one person to another. The average life expectancy for a person with MND is three to five years following diagnosis depending on the activity of the disease and the particular muscle groups affected. The disease strikes people from teens to older age groups; it does not discriminate between gender and race. In Ireland, one person dies every five days from Motor Neurone Disease and there are in excess of 310 people living with MND at any one time.