Dabma Sickle Cell Foundation
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Mission Statement
Dabma Sickle Cell Foundation is a humanitarian organization with a motivation to promote SCD project by launching a programme of enlightenment for quality improvement of life for people with the disorder ,intending couples and highlighting SCD complications. Health according to (WHO) World Health Organization is a state of complete physical, mental and social well- being, not merely the absence of the disease or infirmity . This in most cases often comes down to individual responsibility like genotype combination. Therefore the first step is taking personal responsibility and the second step is taking appropriate action to achieve desired result health wise. Achieving and maintaining health is usually easy if individuals follow the basic principles of health as revealed and then have a positive mental attitude in sickness. The inclusive mission of the foundation is to make people know that it takes commitment to be healthy. GOVERNING STRUCTURE: The daily activities of the organization are overseen by the board of trustees whose members are carefully selected among the stakeholders. They meet quarterly to review the activities of the executive chairman and other committees.
About This Cause
Dabma sickle cell foundation was registered as a corporate body with duly appointed trustees as a non-governmental organization in memory of late Angela Chidinma Dickson on the 10th of February 2011 under the companies allied matter decree 1990 with reference number CAC/IT/NO 43241. Inaugurated on the 13th of September , 2011. Before this time it was operating as group in the name “keeping hope alive” as concerned families and members who are victims of the disorder patients coming together for s common sense. Angela Chidinma Dickson who was a member of the group that died as an undergraduate student of Economics at Bells University of Science and Technology Sango Otta Ogun State as a result of complications from sickle cell disease on Sunday the 22nd day of August 2010. Losing her is hurting as it carries sharpened points that jab in our nerves daily. PROBLEM STATEMENT: Peoples ignorance and neglect of their genetic status in time of marriage even among the elite ones is adding to this avoidable disorder. Despite the deaths, silent and helpless agony in many homes, governments health programme have not covered this tragic malady which has become a natural burden. The chances of many women with sickle cell disorder dying during pregnancy ,deaths of new born babies and children remain very high both in urban & rural areas. Dabma Sickle Cell Foundation as an experienced based foundation is driven by pain and a decision to help families avoid similar painful experience. Superstitious beliefs and high level of illiteracy and cultural biases have led to the stigmatization of SCD patients as “ABIKUN” “OGBANJE” “ALJANU” . Making those living with the disorder and their families to shy away from acknowledging the status of their health. GOALS & OBJECTIVES Strategic interventions to promote maternal and child health in rural areas especially SCD patients. Enhancement of (boys ,girls , women and men)education on sickle cell disorder and its complications. Free medication to SCD patients including pregnant women. The public is just beginning to focus on the various issues of SCD- its symptoms, how it is acquired, who passes it to who, what are its dangers and if there is any cure for the disease yet the population is increasing everyday. Many are ignorant of the complication. § We need a research to indicate level of awareness of SCD- how past campaigns have impacted on the understanding and awareness of diseases in communities where the disease is most significant. § What gaps exist in the awareness § Cost implication of SCD management § What level of assistance has been rendered in managing SCD § What kind of partnership with identified needy communities can be built such as- emphasis on testing couples before marriage, new born babies will go a long way in helping the community realize how serious the problem is. Sickle cell is genetically inherited disease, therefore, there is a great demand for effective awareness and sensitization and training of parents especially those communities or parts of the country where the disease may be more prevalent. OUR TARGET POPULATION: To reach between 500,000 to 1million people affected with SCD across the geo-political zones annually through outreaches and in-house clinically sessions. Sessions to operate twice weekly (Tuesday and Friday). With two consultants attending to maximum of 20 patients each at N2000 (per patient). PROJECT SUSTAINABILITY: Our project will be sustained through internally generated revenue like sale of published works, personal funds and externally through donations, grants and support in kind, gifts from well meaning individuals and organizations. PROJECT ACTIVITIES COLLATION OF CONTACTS & DATABASE NATIONWIDE FACE TO FACE INTERVIEWS WITH THE ASSOCIATE & GENERAL PUBLIC. Identification & mobilization of the incapacitated to health clinics and labs for genotype test. Identification & enlisting of health centers and laboratory. Training of health workers. Free distribution of relevant routine drugs & supplements. Rehabilitating the orphans & those with chronic complications e.g. leg ulcer, acute chest syndrome, stroke etc.. Weekly stakeholders sessions