MYOTONIC DYSTROPHY FOUNDATION
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Mission Statement
We envision a world with treatments and a cure for myotonic dystrophy. The mission of the Myotonic Dystrophy Foundation is Community, Care, and a Cure: We support and connect the myotonic dystrophy community; We provide resources and advocate for care; We accelerate research toward treatments and a cure.
About This Cause
The Myotonic Dystrophy Foundation (MDF) is the leading global advocate helping patients and families navigate the myotonic dystrophy (DM) disease process, and is often the first resource contacted by newly-diagnosed patients, their families, their social workers and their physicians around the world. For many international patients, the Myotonic Dystrophy Foundation is often the only resource they are able to locate, and MDF has provided assistance and support for people living with DM in more than 139 countries around the world. Currently tens of thousands of people living with myotonic dystrophy, their families & friends make up the Myotonic Dystrophy Foundation community. Support & Education - Today, we're the world's largest patient organization focused solely on myotonic dystrophy. We provide education and resources for those living with DM, and help community members find local support groups. We conduct outreach to raise awareness about DM in the medical community with a medical school roadshow. Research - We raise funds to accelerate understanding of DM through research. MDF supports both clinical and scientific research targeted to finding treatments and eventually a cure for this chronic, degenerative disease. Advocacy - MDF advocates for legislation, research, and infrastructure initiatives that will advance our understanding of myotonic dystrophy, accelerate drug development, and improve diagnosis and care. We strive to raise visibility of myotonic dystrophy and people living with DM with key stakeholders in Congress, federal and state agencies, medical professionals, and the media. Visit the MDF website to learn more about the latest news on care, treatment, and research focused on myotonic dystrophy: https://www.myotonic.org/myotonic-dystrophy-foundation-mission