CHIARI & SYRINGOMYELIA FOUNDATION
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Mission Statement
Bobby Jones CSF raises money for education and awareness programs as well as critical research into Chiari malformation, syringomyelia and related disorders.
About This Cause
The Bobby Jones Chiari & Syringomyelia Foundation, Inc. (Bobby Jones CSF) raises money for education and awareness programs as well as critical research into Chiari malformation, syringomyelia and related disorders. We are a 501(c)(3) organization built on leadership, vision and commitment to find a cure for Chiari malformation (CM), syringomyelia (SM) and related disorders. Our research and educational programs serve the estimated 1 in 100 Americans impacted by these disorders every day, along with the millions of families affected around the world. Many recognized world-class physicians, scientists and professionals agreed to collaborate and form a superior Scientific Education & Advisory Board. The trusted and dedicated members of our Board of Directors and Board of Trustees include community and business leaders, educators, legal experts, families, and patients, who have been advocates in the CM/SM community for years. Our financial and programmatic work is overseen by multiple charitable watchdogs including BBB Wise Giving Alliance Seal, Guidestar Platinum Seal, and Charity Navigator.