SMILES FOR SOPHIE FOREVER
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Mission Statement
"A Foundation Confronting Pediatric Brain Cancer - Our Mission: 1. To provide financial and emotional support to families burdened by pediatric brain tumors 2. To promote a global awareness of pediatric brain tumors and an awareness of the lack of funding allocated for pediatric brain cancer research 3. To provide financial support to St. Jude, where Sophie was treated, and other organizations committed to treatment and cure of pediatric brain cancer.
About This Cause
In February of 2007 Sophie Elizabeth Quayle, at age three, was diagnosed with a diffuse intrinsic pontine glioma (DIPG) - a cancerous brain tumor. This type of tumor is located in the brainstem, at the base of the brain. Affecting primarily children, it is the rarest and worst of pediatric brain tumors. Approximately 150 to 200 children are diagnosed each year. This type of tumor is considered terminal, and survival time is typically nine to twelve months following diagnosis. Sophie's parents, Marc and Emily Quayle of Avon Lake, felt an overwhelming sense of helplessness when learning there was nothing the doctors could do to save Sophie's precious life. Sophie passed away October 6, 2007, just seven and a half months after diagnosis. This great despair and frustration lead Marc and Emily on a mission to help children and families suffering from DIPG, while raising awareness and money that will lead to a cure for this awful disease and other types of pediatric brain cancer. Since its inception in 2008, SFSF, a non-profit organization, has granted nearly $500,000 to support its tri-fold mission. It is only through the generosity of so many loyal and dedicated supporters that SFSF can continue to fulfill its mission.