TURNER SYNDROME FOUNDATION INC
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Mission Statement
The goal of the Turner Syndrome Foundation is to support research initiatives and develop educational programs to increase professional awareness and enhance medical care of those who survive Turner Syndrome. Early diagnosis and comprehensive treatments over the lifespan will lead to a brighter and healthier future for all young girls and women.
About This Cause
Why Turner? The foundation seeks to advance women’s health regarding a condition that affects 1 in 2,000 live female births. Turner Syndrome is a random genetic mutation that occurs at the time of conception and anyone of any race, ethnicity or age is potentially at risk for parenting this life threatening condition. Turner Syndrome takes lives as nearly all fetuses afflicted with Turner Syndrome are stillborn, and only 1% of babies will survive. Babies born with Turner Syndrome will require a lifetime of specialized care. Turner Syndrome is the leading chromosomal abnormality in females and society must know that this condition exists and that there is help for those that survive. Early diagnosis is crucial to a girl’s growth and development, and a delayed diagnosis is a serious threat to her future. Leadership Identified in the late 1930’s, the syndrome remains commonly unknown by many. The Turner Syndrome Foundation has a commitment to collaborate with medical societies, universities, researchers, and teachers across the country to create a network of stakeholders. The foundation leadership has a board of trustees and a well-regarded medical advisory board. It has been involved in awareness events across the United States in states such as Arizona, Florida, New York, Tennessee, Texas, New Jersey, Wisconsin, and Washington. The organization is largely lead by a volunteer base to fulfill its mission. National Focus The Turner Syndrome Foundation impacts communities across the United States through the website, conferences, exhibits, monthly newsletter, and outreach: • Information resources online at www.TurnerSyndromeFoundation.org or by telephone at 1-800-594-4585 • Patient education workshops series provides ongoing information for patients and caregivers • Focused to establish centers for specialized care in regions throughout the U.S. • Continuing education opportunities for medical and educational professionals for best practices • Team TSF Awareness Campaign builds awareness & support for the syndrome • National Council of State Leaders delivers programmatic services to all regions A Case For Support Through gifts from donors and the talents of volunteers, we help those who survive by delivering quality resources to professionals, individuals and families who benefit from ongoing learning opportunities, legislative action, specialized health centers, resource tools, and information for research initiatives. Professionals, commercial sponsors, social and civic groups, as well as students, and retirees can find ways that are meaningful to get involved and to make a difference in a young girl’s life today. Donate or volunteer with the Turner Syndrome Foundation and so that this condition will become visible. Turner Syndrome Foundation is a nonprofit organization under the IRS code 501(c)(3). Opportunity awaits for you to give your time, talent, and treasure. The Turner Syndrome community needs your help.