HOPE4HARPER
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Mission Statement
Hope4Harper is a nonprofit organization created in honor of Harper Elle Howard, to educate, raise funds and support scientific research for the CDKL5 disorder and similar seizure related diseases.
About This Cause
Harper's legacy carries on hope through research. She was the first to leave her brain to CDKL5 research, a valuable gift that along with her living tissue, will be the key to ending seizures for not just her CDKL5 disorder, but any disorder that carries with it seizures as a symptom. Her cell line lives at the University of California, San Diego, where it is multiplied and distributed around the world for research. Her brain is being researched, in a collaborative effort with the lab in California, at the University of Pennsylvania. A piece of Harper is used in every project we fund to find ways to establish a better quality of life for those living with disabilities.