GENETIC ALLIANCE INC
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Mission Statement
Genetic Alliance engages individuals, families and communities to transform health. This requires that we as an organization understand what it means to transform systems, dissolve boundaries, create and sustain open space, and promote the process of openness.
About This Cause
Since 1986, Genetic Alliance enables individuals, families, and communities to take charge of their health - both in services and research. We promote policies, build tools, and offer resources to build capacity in communities, enable new cross-sector partnerships, and place control in the hands of the people. We believe that each person is the expert of their own health, in the context of their values and culture. Principles of Genetic Alliance include: Openness We convene and hold space for the pursuit of truth. We hold this space without judgment. We actively search for, recognize, respond to, and release the essential core in the other. We express through mindful presence the love we hold for ourselves and others. We convene with no agenda, externally or internally. Presence We are awake to what is real and true in the moment with ourselves and with each other. We listen deeply to hear the heart and soul of another as well as the system within which we are functioning. We practice full presence to enable us to examine another's point of view, decision, question, or answer for its underlying truth and insight. We aim to identify with that person so that we might see the WE. Transparency Our deliberations, resulting governance, and operations are transparent to all. Disruption We value the fact that we are no longer able to know the outcome of any given process and believe that what will emerge is better than anything any one individual might have planned or imagined. We are committed to discovering and releasing potential energy within individuals, relationships, organizations, and communities and will not stop that energy in search of protecting the status quo. Participation We commit to being a transformational presence in all interactions. We understand that to embody the fullness of presence we must practice and experience it. Diversity Genetic Alliance strives to mirror and go beyond the diversity of our Community. Diversity goes beyond representation, to the deeper choice of identification as described above. Collaboration Learning takes place in real time: the visioning process is one of discovery, and it unfolds as Genetic Alliance works in the world. When anyone is made Other, when any are separated and judged, Genetic Alliance as an organization, and even truth itself are in jeopardy. Accountability We actively, consistently, and humbly assess the truth about ourselves by honing skills of self–assessment and inviting truth–telling from others, in order to increase personal transparency, maturity, and wisdom that may then be shared through one's being in the world. Our first accountability is to embody transformational leadership within our own lives and then within our Community. We welcome the learning that comes from discernment and are always willing to apply the learning first to ourselves by asking, "How is this learning true of me?"