STURGE-WEBER FOUNDATION
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Mission Statement
The Sturge-Weber Foundation’s mission is to improve the quality of life for individuals with a port wine birthmark related conditions through worldwide education, support, and research leading ultimately to a cure.
About This Cause
The Sturge-Weber Foundation is an international resource for individuals and families affected by and living with Sturge-Weber syndrome and Port Wine birthmark related conditions. The Foundation’s commitment is to improve the quality of life and care for those affected through guidance, advocacy, referrals and education while building partnerships to research treatment and management of Port Wine birthmark conditions. The SWF was instrumental in spearheading a successful grant application to the NIH resulting in the formation of the Brain Vascular Malformation Consortium (BVMC). In the spring of 2013, the gene mutation responsible for Sturge-Weber syndrome was discovered. Researchers now understand the cause of both Sturge-Weber syndrome and Port-Wine birthmarks, and are investigating the optimal studies for treatments. Vision Statement The Vision of the Sturge-Weber Foundation is that in all areas of life – public, professional, personal – the following goals will be achievable for our members. In Awareness – when the public will be able to see past the disability to the person. In Empowerment – when families and individuals will be able to obtain the medical care, employment, education, respect and personal achievement they seek In Research - when the pace of discovery will not be hampered by lack of resources and will lead continually toward a cure and advances in treatment.