CureLGMD2i Foundation
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Mission Statement
CureLGMD2i was founded in 2010 to raise awareness and funds to support research for the rare and progressive muscle disease known as Limb Girdle Muscular Dystrophy Type 2I (LGMD2I/R9).
About This Cause
CureLGMD2i (formerly known as The Samantha J. Brazzo Foundation) was created by the Brazzo Family when their daughter, Samantha, was diagnosed with Limb Girdle Muscular Dystrophy (LGMD Type 2I/R9) at the age of two. At that time, the Brazzos realized that there were no organizations accepting donations specifically for research for LGMD2I. They decided to create this 501(c)3 Nonprofit Organization with a mission to spread awareness, advocate, and support research for this rare and progressive disease. LGMD2I is a progressively debilitating form of muscular dystrophy caused by weakness mainly in the shoulder and hip areas. Over time, this excessive muscle wasting can result in cardiovascular, respiratory and overall physical complications typically beginning in early adolescence. To date, CureLGMD2i has funded over $900,000 to awareness and research programs that are working aggressively to establish a treatment for LGMD2I. In order to support continued research, advocacy and awareness programs, we continue to rely on the generosity of our donors. We are hopeful that with the groundbreaking work being done with gene therapy, CRISPR technique and clinical trials, a successful treatment will halt or even reverse the progression of LGMD2I. We are a tax exempt 501(c)(3) approved public charity and our mission is to support cutting edge researchers and the biotech industry working to establish a cure for Limb Girdle Muscular Dystrophy, Type 2I (R9).