NATIONAL FRAGILE X FOUNDATION
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Mission Statement
Our mission is to provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure. Awareness: To increase public and professional awareness of Fragile X to influence public policy, support legislative advocacy, and increase funding for research. Research: To fund and facilitate research that drives scientific and medical advances toward effective treatments and a cure. Community: To assist and educate individuals and families living with Fragile X in all stages of life, through outreach and personal support.
About This Cause
Founded in 1984 as a public non-profit 501(c)(3) charitable organization funded by individual contributions the NFXF serves the FX Community by providing the following services: telephone consultations, medical and genetic services referrals, biennial international conferences, educational advocacy legislative advocacy and public policy program, 30+ volunteer-run community support groups nationwide, family assistance grants, webinars, research grants, and email newsletters