SICKLE CELL DISEASE FOUNDATION OF CALIFORNIA
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Mission Statement
Our mission is “to improve the whole lives of those living with sickle cell disease across the nation by destroying barriers, cultivating unprecedented partnerships & employing innovative strategies to deliver impactful advocacy initiatives & life-enhancing programs, while fostering new research & therapies to eradicate sickle cell disease.”
About This Cause
The Sickle Cell Disease Foundation (SCDF) is the first and oldest non-profit, social service, sickle cell disease organization in the United States today. Founded in 1957, the Sickle Cell Disease Foundation has maintained a viable and reputable organization for 60 years. We address the needs of individuals with sickle cell disease and their families by emphasizing educational and support programs and services that meet the physical, psychosocial and economic needs of our clients. With a growing population of individuals with sickle cell disease and sickle cell trait, the primary focus of the Sickle Cell Disease Foundation is to educate, screen and counsel those persons at risk of having children with sickle cell disease and other hemoglobin disorders. Sickle cell disease is the most common genetic disease in the world. Commonly found in people whose families come from Africa, South or Central America (especially Panama), Caribbean islands, Mediterranean countries (such as Turkey, Greece, and Italy), India, and Saudi Arabia. Currently, approximately 250 million people worldwide carry the gene responsible for sickle cell disease and other hemoglobin diseases. Each year about 300,000 infants are born with a major hemoglobin disease worldwide. In the United States, about 1 in every 500 African Americans are born with the disease. Hispanic Americans also are affected at a rate of about 1 in 1,000 to 1,400. There are approximately 100,000 individuals with sickle cell disease in the United States with 10% of the population at risk for sickle cell disease. It is estimated that there are 10,000 with the disease living in California, however the actual figure is currently unknown. Annually, in California approximately 150 babies are identified with sickle cell disease and one in every 70 infants is identified with sickle cell trait or another hemoglobin trait, the carrier status for sickle cell disease and other hemoglobin diseases.