EPILEPSY DURHAM REGION
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Mission Statement
We are committed to promoting independence and optimal quality of life for individuals living with epilepsy and their families, through support, advocacy, and public education. We offer traditional and online virtual services.
About This Cause
What Does Epilepsy Durham Region Do? • We provide support, education, and referral services • We advocate for people living with epilepsy and their families, locally and provincially • We develop partnerships to avoid duplicating services and work alongside community agencies and school boards to teach what epilepsy is, how it affects students and how accommodations can be made to help our children reach their full academic potential Epilepsy Durham Region receives no government nor United Way funding Funds generated through the HPE Employee Giving Program will support our local Paediatric Management Program to assist children and families with: • the high costs of anti-seizure medication • transportation costs to epilepsy treatment centres outside of Durham Region (currently there are no epilepsy centres nor specialists in Durham Region) • specialized summer camps for children living with seizures • education programs Epilepsy Durham Region is a vibrant agency that cares deeply for children and our community. Our agency is run by a team of two staff and is centrally located in Whitby, supporting all eight municipalities in Durham Region including Port Perry and Brock Township. We are caring, passionate, and empathetic people – one of us is living with epilepsy and the other is living with a brain injury, and as such, we know first-hand the challenges of epilepsy and how they can affect a family. By the Numbers: Epilepsy affects 1 in 100 people, with no cure on the horizon. The hard truth is that for 1 in 1000 people living with epilepsy this disease can be fatal, and the very real tragedy is 1 in 150 with 'intractable seizures' will die.