Societe de sclerose systemique (sclerodermie) du Quebec inc.
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Mission Statement
Scleroderma, or systemic sclerosis, is a relatively misunderstood chronic disease. It is charaterized by the overproduction of collagen (fibrosis) and obstruction of small blood vessels. This imbalance triggers excessive scarring, leading to a hardening of the skin and an alteration of internal organs such as the heart, lungs, kidneys and the gastrointestinal system. In addition, it is an autoimmune disease: the immune system turns against the person's own body by producing destructive autoantibodies. Unfortunately to this day scleroderma is still incurable, and although several thousands of Quebecers are suffering from this disease. In Quebec, woman are five times more likely than men to be affected by scleroderma. The disease also strikes children, although onset of symptoms usually occurs in the early forties.
About This Cause
About us… The Société de sclérose systémique (sclérodermie) du Québec, also referred to as Scleroderma Quebec, is registered as a charitable organization (no 89808 9693 RR 0001) with the federal government since 1992. Scleroderma Quebec is managed by a board of directors comprised of volunteers, and from which stem several committees responsible for accomplishing its missions. Scleroderma Quebec is in the process of implementing, throughout Quebec, strategic networks of support for people suffering from the disease and their loved ones. Thanks to its continuing fund raising efforts, Scleroderma Quebec encourages research aimed, first and foremost, at leveraging its investments. A non-profit organization Our Mission: • To provide support and assistance to patients with scleroderma and improve their quality of life. • To financially contribute to research and help fight scleroderma. In 2005, Scleroderma Quebec created at the Faculty of Medicine of the University of Montreal, the first Canadian Scleroderma Research Chair. Services: • Web site • Telephone support • Distribution of information • Educative conferences • Research subsidies • Organization of fundraising activities throughout Quebec