UNIONE ITALIANA ITTIOSI
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Mission Statement
Ours is a non-profit association that pursues exclusively the aim of promotion and social solidarity for patients suffering from ichthyosis and their caregivers and supports scientific research for all forms of this disease
About This Cause
Our association, registered in the RUNTS, Registro Unico del Terzo Settore), was founded in 2003 and acts throughout the Italian national territory with the aim of reaching and aggregating all people suffering from ichthyosis or interested in this rare skin pathology. Since its formation, UNITI has carried out numerous activities to promote the protection and recognition of the rights of patients suffering from ichthyosis and their caregivers, as well as various actions to raise awareness and support scientific and social research in this field, also arousing interest of the local and national media who dedicated articles and informative interventions to us. Every year the association organizes a conference with the aim of providing significant information and updates and allowing meetings between patients, institutions, doctors and researchers.