CYSTIC FIBROSIS TRUST
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Mission Statement
The Cystic Fibrosis Trust fights for a life unlimited for everyone affected by cystic fibrosis in the UK. We want to create a world where being born with CF no longer destroys lives, and we will not stop until we beat it for good.
About This Cause
The Cystic Fibrosis Trust fights for a life unlimited for everyone affected by cystic fibrosis in the UK. We want to create a world where being born with CF no longer destroys lives, and we will not stop until we beat it for good. We do this by when everyone born with CF has the same expectations of health, wellbeing and a chance to grow old as those without it. There is no cure for CF; two lives are lost each week to the condition and the average age at death is just 28 years old. Cystic fibrosis is a life-shortening genetic condition that destroys the lungs and digestive system. It affects over 10,800 people in the UK, with one in 25 of us carrying the faulty gene responsible for the condition. We provide the following services: Advice and support - for anyone affected by cystic fibrosis. Helpline – offering general advice, support and information on any aspect of CF, including help with financial support. Grants programmes – we provide emergency, health and wellbeing and holiday grants. Wills/legacies – we provide a free will-writing service and administration assistance. We deliver the following projects: Research – we invest over £3.5 million a year on research to find solutions for cystic fibrosis. Campaigning – we tackle issues that matter to people with CF at the highest level. Clinical care – we drive up the standards of care within the NHS for people with cystic fibrosis. Raise awareness – we want everyone to know what CF is and how they can help. We help the following people: People with CF Parents of people with CF Friends of people with CF Siblings of people with CF Grandparents, aunts, uncles, nieces, nephews and cousins of people with CF