FRAXA RESEARCH FOUNDATION INC
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Mission Statement
FRAXA's mission is to find effective treatments and ultimately a cure for Fragile X syndrome. Fragile X is the most common inherited cause of intellectual disabilities and autism worldwide.
About This Cause
FRAXA was founded in 1994 by three parents of children with Fragile X.. At that time, there was no Fragile X website, no Facebook group, and only a handful of scientists were studying Fragile X. Funding by the U.S. government for this disease was under $2 million per year, and only $30,000 of that was devoted to treatment studies. As parents, we had to change that. Fragile X research holds great promise for advancing understanding of other disorders like autism, Alzheimer’s disease, and X-linked developmental disabilities. Along with funding research at universities around the world, FRAXA runs scientific meetings, advises pharmaceutical companies large and small, provides education on college campuses, community settings, and international conferences. Families can reach out to FRAXA and receive materials, resources, guidance, referrals, and an international community of support.