Cornelia de Lange Syndrome Foundation, Inc.
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Mission Statement
Cornelia de Lange Syndrome (CdLS) is a genetic disorder present from birth, but not always diagnosed at birth. It causes a range of physical, cognitive and medical challenges and affects both genders equally. CdLS does not discriminate—it’s seen in all races and ethnic backgrounds. The occurrence of CdLS is estimated to be 1 in 10,000 live births.
About This Cause
The Cornelia de Lange Syndrome (CdLS) Foundation is a family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS make informed decisions throughout their lives. Contact the Foundation to request our free packet, Starting the Journey: Information and Support for New Parents. This packet of basic information helps you and your child—no matter how he or she is—receive the best start possible. It addresses topics related to growth and feeding, education, genetic information, and much more. The CdLS Foundation provides families, professionals and others with information about the syndrome. Please use the links on the left to learn more about the syndrome.