KAREN WYCKOFF REIN IN SARCOMA FOUNDATION
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Mission Statement
Rein in Sarcoma is dedicated to educating the public and medical community about sarcomas, supporting sarcoma patients and their loved ones, and funding research directed toward developing new treatments and finding a cure for sarcoma cancers.
About This Cause
Our Mission is Simple and our Work Substantial: • Educating the public and medical community about sarcoma cancers, • Supporting sarcoma patients and their loved ones, and • Funding Research directed toward developing new treatments and to find cures for Sarcoma Cancers With its three-pronged commitment, the Foundation reaches over 2,000 people annually and has funded over $2 million in sarcoma cancer research. SARCOMA CANCERS Sarcomas are highly malignant and rare types of cancers that occur in the connective tissues of the body. Approximately 15,000 new cases of soft tissue and bone sarcoma are diagnosed each year in the United States. While rare among adults (less than 2% of all adult cancers), sarcoma cancers are among the top five most commonly diagnosed cancers affecting children. OUR STORY and ACCOMPLISHMENTS Education of the Public and Medical Providers: Through our Red Flags of Sarcoma Campaign we intend to significantly reduce the number of late and misdiagnosed sarcoma cancers. We are engaged in a multi-state campaign (in collaboration with the University of Minnesota, the Mayo Clinic, and Children's Hospitals and Clinics of Minnesota) to increase better and timely diagnoses of Sarcoma cancers leading to up an 20% increase in survivorship. This includes: • July Being Declared Sarcoma Awareness Month in Minnesota • Creating and publicizing a You-Tube video "From We never Heard of It, to We Caught it Early" - viewed by over 10,000 people • RIS Sarcoma Presentations and Exhibits at major medical conferences and provider eduction programs • Sarcoma Cancer education being added to the University of Minnesota Medical School Curriculum • Sarcoma Day at area medical schools. • 5 RIS Sarcoma Scholars - Learning and educating their peers at the Mayo and University of Minnesota Medical Schools • RIS Sarcoma Education print materials for the medical profession and the public Sarcoma Patient and Family Support: We are the primary support system for sarcoma patients and their loved ones in the Upper Midwest. Through RIS, sarcoma patients and their families have both personal support and educational resources. A large a caring sarcoma community of survivors, doctors, and those that have lost someone to sarcoma comes together to provide these resources: • RIS New Patient Sarcoma Starter Notebook- Distributed and mailed free of charge to any sarcoma patient or loved one anywhere in the country. Provides key information, resources and support for newly diagnosed sarcoma patients • Our website serves as a significant nationwide resource and is visited by hundreds of people daily. • Peer-to-Peer Support- Providing opportunities for newly diagnosed sarcoma patients to meet sarcoma survivors. • Patient Support Activities- RIS in-person Gatherings held every few months to provide support and encouragement • Sarcoma Family Picnic- Free event in July held in conjunction with our annual Party in the Park - attended by over 500 sarcoma patients, survivors and loved ones. Funding Sarcoma Cancer Research: Beyond the $1.9 million granted by the Foundation for sarcoma cancer research at the University of Minnesota, RIS has been the catalyst for greatly expanded sarcoma cancer research and treatment. Our funding has leveraged over $7 million in additional research.