XLH NETWORK INC
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Mission Statement
Mission: Promote health and well-being of people with X-linked Hypophosphatemia by providing information and moral support with day to day management issues of XLH; foster education and awareness among the public and medical/dental community; encourage and support research into XLH for improved treatment.
About This Cause
XLH is a rare genetic disorder, affecting 1 in 20,000 people, passed from one generation to the next, although spontaneous mutations of the affected gene may occur in a family with no previous history of the condition. The XLH Network, Inc. began as a website and listserv in 1996. Our organization is now a 501(c)(3) nonprofit corporation, and works to connect XLH affected families around the world with knowledgeable clinicians, active researchers and up-to-date information in diagnosis and treatment.