MYOCARDITIS FOUNDATION
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Mission Statement
The Myocarditis Foundation is a 501(c)3 corporation founded in March 2005 by a Giant Cell Myocarditis survivor and her two doctors, who worked together to bridge her to her transplant. In her thanks, she formed the Myocarditis Foundation to increase education/awareness, provide research grants specific to myocarditis, and emotional support to those affected by myocarditis. Myocarditis is considered a rare disease and is listed along with Giant Cell Myocarditis on the NORD website (National Organization of Rare Diseases). It often attacks young, active, athletic healthy individuals (mainly children, teenagers and young adults) often causing sudden death.The Myocarditis Foundation's goal is to end the needless suffering that this disease causes and find an early diagnostic test to allow for improved survival rates from the disease.
About This Cause
The Myocarditis Foundation raises funds through grants, private donations and fundraisers by families to support our mission of education, research and emotional support of those affected by myocarditis. In the 10 years that the Myocarditis Foundation has been in existence we have raised almost $500,000.00 that we have reinvested into Myocarditis Research, and provided education to both the medical and public communities on the disease. There is little known about the disease and not much if anything had been taught about it in medical school. Our doctors have been working to change that. We are working on an early detection blood test that will allow us to pinpoint the diagnosis of myocarditis in its early stages, where those affected will have an increased chance of survival without the long term side effects of heart failure.