OSTEOGENESIS IMPERFECTA FOUNDATION INC
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Mission Statement
The Osteogenesis Imperfecta Foundation, Inc. (OI Foundation) is the only voluntary national health organization dedicated to helping people cope with the problems associated with osteogenesis imperfecta. The Foundation's mission is to improve the quality of life for people affected by OI through research to find treatments and a cure, education, awareness, and mutual support.
About This Cause
Osteogenesis Imperfecta (OI) ‐ or as it is commonly called ”brittle bone disease” ‐ is a genetic disorder of connective tissue characterized by fragile bones. More than 25,000 people in the US have been diagnosed with OI and because it is often misdiagnosed, that number could be as high as 50,000. OI can be diagnosed in utero or at birth and ranges in severity from a person who will experience a few fractures to those who may have hundreds in a lifetime. In severe cases, a cough could break a rib or putting on a t‐shirt could break an arm. In addition to fractures, people with OI often have muscle weakness, hearing loss, fatigue, joint laxity, curved bones, scoliosis, brittle teeth, and short stature. There is currently no cure for OI so treatment focuses on minimizing fractures, and maximizing mobility and general health. This can include casts, splints or wraps for broken bones; physical therapy and safe exercise including swimming; braces to support legs, ankles, knees and wrists; orthopedic surgery, often including implanting rods to support the long bones in arms or legs; or medications to strengthen bones. The OI Foundation’s mission is to improve the quality of life for people affected by OI through research to find treatments and a cure, education, awareness, and mutual support.