RYANS QUEST INC
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Mission Statement
The mission of Ryan's Quest is to increase awareness of Duchenne muscular dystrophy with the purpose of allocating funds for research that has the greatest potential of finding a cure or treatment for this disease.
About This Cause
Ryan's Quest is primarily focused on supporting research for near-term, potential therapeutics and better testing platforms (tools) for development of Duchenne compounds. We are also interested in helping support families that are enrolled in clinical trials. Duchenne muscular dystrophy is the number one lethal genetic disorder in childhood. It affects 1 in every 3,500 births. 50% of all cases of Duchenne are the result of a spontaneous genetic mutation-meaning it could happen to anyone. Boys with Duchenne lose the ability to walk between the ages of 8-10. They typically require respiratory support by their late teens, and survive only into their 20s. Duchenne is invisible to the human eye because it lives within the bodies of seemingly healthy children. However, it slowly and painfully tears away the muscles of those it targets and strips them of their independence. We founded Ryan’s Quest, in hopes of speeding research efforts in this disease. With the community’s support, we have funded over 2.5 million dollars to date. The funds received through Ryan's Quest are directed, in full, to Duchenne muscular dystrophy research.