LUNG TRANSPLANT SUPPORT ORGANIZATION INC
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Mission Statement
Our mission is to support lung transplant patients, patient caregivers, and the medical professionals who care for them. We inform and educate patients on resources available beyond their personal medical insurance coverage including but not limited to housing, medical and financial assistance. Our goal is to provide new patients with a community of fellow transplant recipients who understand their journey and can assist by sharing and encouraging in a positive and supportive manner. Our objectives include: Partner with the transplant medical community to enhance patient wellness Educate and inform the public about lung transplant and donor awareness Help to provide patient critical care equipment Provide housing, medical and financial assistance and resources
About This Cause
On April 13, 2007, something happened at a local hospital in Phoenix that affected hundreds of lives in Arizona and the Southwest. A local Scottsdale woman received the gift of a double lung transplant and so began a new era at the facility. Since then the dedicated doctors and nurses of the Heart and Lung Institute at St. Joseph’s Hospital Medical Center have continued to give the gift of life to others through lung transplants. These transplants gave the recipients the ability to do things they believed had been lost to them forever. Elated with being able to live “normal” lives again, a few of the lung transplant recipients got together and with their loved ones formed the Lung Transplant Support Organization, (LTSO) which is also known as GOTMASK.ORG. This non-profit corporation exists to help other lung transplant recipients at St. Joseph’s Hospital. There are no paid administrators or employees at the LTSO; all are volunteers. The typical costs of a lung transplant are in the hundreds of thousands of dollars and even with exceptional health insurance, there are considerable costs that the recipient and their caretakers face. These costs range from traveling back and forth from the hospital for testing prior to transplant to multiple post transplant checkups in the Heart and Lung Institute (HLI). The transplant requires the recipient to stay in the local area for weeks after receiving the new lungs. If the recipient doesn’t live locally, costs quickly add up. We are dedicated to providing financial assistance directly to the needy patient and / or their caregivers. We assist with travel costs and help with subsidized housing at our Lung Transplant Quarters. Patients can stay there, for little or no cost during the minimum 12 weeks they have to stay in the area after transplant. They are also welcome to use the facility prior to or after successful transplant when they come back for testing or routine procedures.