GLOBAL GENES
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Mission Statement
Supporting Next-Generation Advocacy Global Genes provides patient advocates with a continuum of services to accelerate their path from early support and awareness through research readiness, using a collaborative approach that involves biopharma, researchers and funders, with data as a central core.
About This Cause
Vision We envision a globally connected community equipped to eliminate the challenges of rare disease. Our Story Global Genes’ story began with our loved ones. We are the friends, family and supporters of patients close to us who are affected by rare disease. We understand the confusion, the overwhelming experience of the unknown and the feelings of isolation all too well. And we know we aren’t alone. That’s the reason Global Genes was born – to connect, empower and inspire the rare disease community. For more information, please visit www.globalgenes.org and follow @GlobalGenes on social media to join the RARE conversation!