THERE GOES MY HERO
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Mission Statement
Save Lives. Provide Hope. Help Those Impacted By Blood Cancer.
About This Cause
There Goes My Hero is a grassroots organization based in Baltimore. The organization was founded in 2009 with the goal of supporting blood cancer (leukemia, lymphoma and other blood disorders) patients and their families after our founder Erik Sauer’s own battle with blood cancer. Our main purpose is adding potential donors to the bone marrow registry. Every year, 170,000 people will receive a blood cancer diagnosis in the U.S. For many patients suffering from blood cancers and blood disorders, a bone marrow transplant is the best chance for survival. While some patients are able to find a matching donor within their family, 70% of patients rely on the bone marrow registry to find their perfect match. Although we are small, we have a large impact. Since 2009, we have added over 22,680 people to the bone marrow donor registry. Our drives have found 709 matches which led to 67 life-saving transplants. In addition to adding potential donors to the registry, we also provide a variety of support services to blood cancer patients and their families undergoing treatment. In partnership with Johns Hopkins Hospital and the University of Maryland Medical Center, the Hero Fund allows us to cover the unanticipated costs of blood cancer treatment, including meals during treatment, temporary lodging, parking, transportation, and copays. This prevents patients and families from having to forgo life-saving medication or to cover their basic needs like rent, mortgage, and utilities. To date we have provided 155,000 meals to patients during and post discharge, as well several hundred free parking coupons, transportation vouchers and co-pay vouchers. We also recently launched a new initiative called Color The Registry to make the bone marrow registry more diverse. Color the Registry seeks to diversify the bone marrow donor registry so that it will reflect the demographics of the United States at large, offering hope to all patients in need of a bone marrow transplant, no matter their ethnic or racial background.This is important because people of color are underrepresented on the bone marrow donor registry, meaning they have a harder time finding a donor and have worse health outcomes than people of European ancestry. With the help of community and corporate volunteers, we serve meals to cancer patients and their caregivers at the Hackerman Patz Patient and Family Pavilion at Johns Hopkins Medical Institutions.