ELIANAS LIGHT INC
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Mission Statement
Eliana's Light improves the whole health, well-being and quality of life of MD, DC, and VA families that include children who have medical complexities.
About This Cause
We provide emotional, financial, and educational support to family members while connecting their caregivers to additional resources. We also regularly organize volunteer programs that build community and connection while raising awareness on these families and whole health care. We’re filling gaps in our nation's support systems that founder Whitney Ortiz experienced when taking care of her daughter, Eliana, who had a heart condition and transplant. Eliana’s Light's collaborative “C.A.R.E” model works with medical centers, health care providers, housing assistance, and other specialists to give families the integrated and integrative support services they need. We hope to deepen our model within the Washington, DC, Maryland, and Virginia region and also scale it nationally. We invite your support and collaboration in all areas of our mission. Our Vision: We are a go-to health and wellness support system and resource for families that have children with complex medical conditions. We improve each family member’s quality of life, wellness and well-being. By extension, we help the whole family unit. We recognize each member of a care team and their roles in transforming today’s health care system into one that focuses on the whole health of the entire family through collaborative community-based support. Our Approach: We take a personalized approach and use a Policy, Systems and Environment (PSE) lens while doing our work. This method recognizes the reality in which families live, work, attend school, and receive medical attention. It addresses the policies (governmental and within institutions), systems (within institutions and a community), and the environment (within institutions and a community) that affect a person's whole health and well-being. A PSE approach is a "long-term approach that is designed to make a sustained improvement in community health, and builds on the cultural and social assets of the community. It has a greater chance of success, and empowers communities to take part in the process and advocate for their own health. It also fosters strategic public-private partnerships to improve the health of the community." This Is How We C.A.R.E.: Connect: We connect to families where they are through our Eliana’s Light Constellation Kits, learning events, tip sheets, and communications channels. We also connect families to resources, specialists, other organizations, and information that can help reduce their physical, mental, emotional, spiritual, and/or financial stress. We build trusting, compassionate relationships with them through our shared humanity while we develop “Constellations of C.A.R.E.” through the collaborative community service activities we organize. Advocate: We advocate for Integrative Medicine (IM) and integrative care services within pediatric medical facilities and as part of standard medical care, therapy programming and research initiatives. For example, we collaborate with hospital staff and with physical, occupational, feeding, and speech/language therapists on ways to incorporate mindfulness and integrative care services into their programming. Raise Awareness: We raise awareness on whole health and related programming, approaches and strategies that help reduce stress, anxiety, pain, and fear, especially in regards to medical care and treatments. Exchange: We serve on various advisory committees and manage one directly in order to exchange information and resources with local specialists in areas relevant to our mission. We C.A.R.E. alongside collaborators, together forming Constellations of CA.R.E. in a community for families with children who have complex medical conditions. We accompany families for as long as they'd like to stay connected to Eliana's Light. When the family's needs change, we help guide them to other support services that are relevant to their new needs. We do not provide technical expertise directly; we instead help connect caregivers to experts who are part of Constellations of C.A.R.E. within our communities. For more information, we invite you to visit our website: www.elianaslight.org. We're happy to answer any questions you may have. Please feel free to email (info@elianaslight.org) or call (703-899-6129) us. Thank you for thinking to give support to DC, MD, and VA families via Eliana's Light.