CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION
This organization has already been registered
Someone in your organization has already registered and setup an account. would you like to join their team?Profile owner : a****************e@c**********************n.o*g
Mission Statement
To serve as a collaborative center of education, resources and support for children and their families living with with neurologic conditions, and facilitate connection with medical professionals who care for them. We envision a world in which all children living with neurologic conditions reach their full potential.
About This Cause
The Child Neurology Foundation (CNF) is a national non-profit that works to support the whole child neurology community. We are the only non-profit in the child neurology advocacy space that was started by physicians, and to this day CNF has strong physician leadership on our Board of Directors. We bring together the voices of parents and caregivers, patients, physicians, industry partners, and other advocacy organizations. Our Core Values guide our intentions, our partnerships and our programs. 1.) PROFESSIONALISM: We treat others as they would want to be treated. We are collegial and respectful in our professional relationships. We are dedicated to expanding our knowledge, being innovative, and understanding the perspectives of others. We honor and respect difference and diversity in all its forms. We strive to exhibit excellence in our work. 2.) INTEGRITY: We are accountable for our commitments and our actions. We are committed to ensuring the interests of the children and families we serve come first. We promote honesty and transparency in our relationships with each other and our collaborators. 3.) COLLABORATION: We work humbly, to identify and understand the urgencies and challenges facing our shared community; we know that they cannot be overcome alone. Whenever possible, we earnestly collaborate on the actions, programs and initiatives we engage. We want to go farther, so we go together. 4.) STEWARDSHIP: We are committed to being good listeners and to act in responsive service to the needs of the child neurology community. We are respectful stewards of the relationships and stories shared with us. We are empathetic, compassionate and positive. While CNF's programs ebb and flow over the years, our Core Values are woven through everything that we do to build and deliver resources and programs to the child neurology community. WE ARE CONVENERS: Convening is the name of the game at CNF. We approach big, bold issues for the child neurology community, bringing together community stakeholders (industry, patient advocacy, health care providers) to tackle overarching issues. WE ARE LISTENERS: We believe in the power of listening and storytelling, and all of CNF's initiatives begin by gathering information and learning the needs from our community. WE ARE RESOURCE CREATORS: We create resources to address complicated, messy issues that affect the entire child neurology community. WE ARE SUPPORTERS: CNF knows that navigating the diagnosis, treatment and management of a child with a neurologic condition can be life changing for a parent or caregiver. The CNF Peer Support Program provides families and caregivers a direct connection to an experienced Peer Support Specialist to help navigate their journey. CNF also strives to help other advocacy organizations build healthy programs to, not only support families in their disease communities, but also construct a connected network of accessible, informed peer support providers.