PCDH19 ALLIANCE
This organization has already been registered
Someone in your organization has already registered and setup an account. would you like to join their team?Profile owner : j***e@p********o.o*g
Mission Statement
Our mission is to improve the lives of children and families who are affected by PCDH19 Epilepsy (Girls Clustering Epilepsy). The PCDH19 Alliance focuses on raising and directing funds to scientific research with the goal of finding better, more effective treatments and, ultimately, a cure; providing information and support to affected families; and assisting the efforts of the medical community, so that no family suffers without a diagnosis and the most appropriate medical treatment.
About This Cause
The PCDH19 Alliance was started by the parents of girls affected by PCDH19 Related Epilepsy (Girls Cluster Epilepsy) in an effort to support ongoing research into this debilitating disorder. The PCDH19 Alliance is 100% volunteer run. Our mission is to improve the lives of children and families who are affected by PCDH19 Related Epilepsy. The Alliance focuses on raising and directing funds to scientific research with the goal of finding better, more effective treatments and, ultimately, a cure; providing information and support to affected families; and assisting the efforts of the medical community, so that no family suffers without a diagnosis and the most appropriate medical treatment.