Rusfond USA
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Mission Statement
The Russian American Children's Foundation (RACF), founded in 2012 as Rusfond USA, is an American children’s charity that helps Russian children with rare, often deadly diseases, receive groundbreaking American medical care before it’s too late. There are countless children in the world that need help... And many children’s charities created to help them. We want to call your attention to an American children’s charity that you may not have heard of. One that helps children, whose rare, often deadly diseases, don’t make headlines in the news. Children... Who have been abandoned by their government... By their health care system... And by other charities. CHILDREN WHO ARE DYING AT UNPRECEDENTED RATES Critical congenital heart defects, just one of many rare diseases... Kills at least 12 of these forgotten children every day. That’s 4,385 children dying unnecessarily every year. That's like the Titanic sinking... Two times. Every year. If these children had been operated on as infants... As they are in America... They would be leading normal, healthy lives. But they were born in another part of the world. Their desperate parents watch as they slowly die... All the while hoping and praying for a miracle. The little-known American charity... That helps save these children’s lives and... Answers their parents’ prayers is... The Russian American Children's Foundation (RACF). AND RACF'S STORY IS YOUR STORY... It’s the story of generous, compassionate, hard-working Americans... Who have the courage to set politics, prejudices, and stereotypes aside... To help create a miracle for a child... Who has no one else to turn to. Americans who believe in America’s promise that... "All men are created equal, that they are endowed by their Creator with certain unalienable Rights, that among these are Life, Liberty and the pursuit of Happiness.” Rights that are universal the world over. Americans who believe that children shouldn’t have to die... Because of where they are born. Mark Twain once wrote that... “The two most important days in your life are... the day you are born and the day you find out why.” For you, that day could be today... The day you help save a Russian child. We know what you might be thinking... Aren’t Russian children Vladimir Putin’s problem? Isn’t this something for the Russian government to address instead of meddling in our elections? Why don’t rich Russian oligarchs pay to help Russian kids? Besides there are lots of worthy causes right here at home in America! All common reactions… with some uncommon answers. Let’s look at each and answer other questions as well. ISN'T THIS PUTIN'S PROBLEM? You bet it is. But it’s only one out of thousands upon thousands of his problems. The sad part is... Even if it becomes his number 1 problem tomorrow… There is no solution. In Russia, the phrase “your child has a rare disease” sounds fatal to most families. NOTHING CAN BE DONE TO HELP Doctors know little about it. Hospitals don’t have the advanced technology required to help these children. Medical authorities refuse to acknowledge they're incapable of treating them. A mother asked the chief medical officer at a hospital in Russia... What can be done about her son’s rare heart condition? The chief replied, “try again for a healthy child.” For another Russian boy with a rare form of eye cancer... The “solution” is to remove his eye. That’s what happened to little Max from Russia… MAX'S PROBLEM It was 2013. The parents of one-year-old Max notice his left eye has a strange glow. At first, doctors believe it’s a cataract, but a more detailed exam shows it’s a tumor. They travel cross country for treatment to save their son… Only to find out... There's a tumor in his right eye too! Doctors remove Max’s left eye. In place of the eye, Max now has a prosthesis. But the cancer continues… Max's right eye is getting worse… The doctors give him chemo… BUT THE SITUATION IS STILL DANGEROUS The discussion in Russia turns to removing his other eye too. His parents now focus all of their efforts... To save Max’s right eye. They urgently search for help. Considered one of the best in the world for treating Max’s condition... A New York cancer center has a unique approach that... Kills the cancer cells AND saves the child’s eye. In 2014, supported by RACF, Max’s father brings his little boy to New York. Doctors at Memorial Sloan Kettering Cancer Center... Save Max’s right eye. If not for them, Max would be blind. Today, Max is the same boy he was before the cancer... ...cheerful, mischievous, active. He talks a lot. He’s interested in everything. And he makes his parents happy!
About This Cause
BORN THIS WAY The world over, children are born with rare, life threatening diseases through no fault of their own or their parents. We’ve heard their heart-breaking stories… A boy born with half a heart. A girl born without ears. A child going blind. Conditions occurring randomly with no known cause. Too often there is no solution for these children. Except in America. These children become victims not only of how they were born but also victims of where they were born. THE BIGGEST CHALLENGE… Is in paying for the medical treatment. It’s expensive. The supply of technology and medications to treat rare disease in children is limited... Making them high cost. WHY DON'T RICH RUSSIAN OLIGARCHS HELP? When was the last time you heard someone ask… “How much has Bill Gates done for children with eye cancer?” “Why doesn’t Jeff Bezos pay for this child’s cancer treatment at St. Jude’s?” If these billionaires don’t publicize it themselves, how do we know what they have or haven’t done to help children with rare diseases? The short answer to why don’t rich Russian oligarchs help is that they do help. Business leaders and ordinary Russian citizens donate billions of dollars to charities in Russia. One of Russia’s largest charities, the Russian Assistance Fund, works closely with RACF. They have raised over $8,000,000 to help send 53 children to America for medical treatment. THERE’S NO MARKET FOR THESE FORGOTTEN CHILDREN As a “market” rare diseases are not big enough to gain the support and resources for discovering treatments. How often, for example, is a child born without one or both ears? According to the Lucile Packard Children's Hospital Stanford in Palo Alto, California... It happens only once every 5,000 births. A rare occurrence, but that still means… Every day somewhere in America and around the world… …a baby is born without an ear. Ask yourself, how much are your ears worth to you? Or your eyes? THIRTY PERCENT DIE BEFORE KINDERGARTEN Many rare diseases appear early in life. About 30% of children with rare diseases die before age five. Who can a child, especially a child in Russia, turn to? What are their parents supposed to do? Especially when virtually everything we hear about Russia is negative… ELECTION MEDDLING, COLLUSION, SANCTIONS… It wasn’t always this way. Russia and America were Allies in World War II and linked up in space in 1975. Even today, the United States and Russia work together on the International Space Station for the common good. BUT THERE ARE LOTS OF WORTHY CAUSES RIGHT HERE IN AMERICA... Yes! That’s why RACF supports American doctors, American hospitals, and groundbreaking American medical care. RACF also provides funds to Ronald McDonald Houses across America, to offer a home away from home for families of sick Russian children. Since 2012, RACF has supported Russian children treated at top rated children’s hospitals like Cincinnati Children’s. There, a little girl from Russia receives the first heart transplant of a Russian child on U.S. soil. KSENIA GETS A NEW HEART In 2013, RACF helps bring one-year-old Ksenia to Ohio for open-heart surgery. But she’s too far gone. A heart transplant is the only way to save her life. After two years and three months of waiting, all the while supported by RACF, she is called in. The operation lasts five hours – from two in the morning until seven. Today, Ksenia celebrates her seventh birthday. Her new heart beats loudly and strongly as she blows out the candles on her cake! DONATIONS TO RACF HAVE DOUBLE THE IMPACT You help save a Russian child AND support an American hospital. You help save a Russian child AND support Ronald McDonald House. BUT I'VE NEVER HEARD OF RACF St. Jude’s is a popular children’s charity. But have you ever heard of ALSAC? It stands for the “American Lebanese Syrian Associated Charities...” ALSAC is responsible for raising 75% of the funds necessary to operate St. Jude’s Hospital. RACF IS A 501C3 PUBLIC CHARITY Registered with the IRS and... The State of New York, Office of the Attorney General, Division of Social Justice, Charities Bureau. Every year RACF files... Detailed financial statements prepared by a certified public accountant... With the IRS and the New York State Attorney General's Office. RACF has a public profile on GuideStar... An information service specializing in reporting on U.S. nonprofit companies. In 2019, RACF earns... GuideStar's Platinum Seal of Transparency... It’s highest level of recognition… For voluntarily sharing important information with the public... So that potential donors can find in-depth financial information about our organization. RACF’S SPENDING PROMISE All donations to RACF will be spent in the United States. RACF guarantees that it will never directly or indirectly transfer funds to... Any entity, foundation, organization, or individual based in Russia. It’s the first of its kind guarantee by any American charity. A VERIFIABLE TRACK RECORD Since 2012, RACF has reviewed 108 cases. Fifty-three RACF families collectively made 156 trips to the United States. Virtually every month, another child arrives who needs life changing American medical care. All thanks to caring, compassionate, generous Americans who are willing to help someone they have never met. THE SECRET TO RACF’S SUCCESS RACF achieves success in helping children with missing ears, rare forms of cancer, and complex heart defects by having emergency cash reserves. Without emergency funds... Some of these children will be... Disabled for the rest of their lives. Others will die. With emergency funds, they can lead normal lives just like any other child their age. HOW MUCH WOULD YOU PAY NOT TO GO BLIND? Groundbreaking American health care is expensive because it’s the best on the planet. And RACF negotiates the best rates possible to help children suffering from rare disease. How much of a price would you put on your hearing? How much would you be willing to pay not to go blind? WHAT HAPPENS TO THE CHILD… Who cannot exercise his or her rights to “life, liberty, and the pursuit of happiness…” Because he or she was born in another country? Do we watch them die? Turn the page? Change the channel? Log out? YOU’RE READING THESE WORDS FOR A REASON When an innocent child has no one else to turn to and needs help… Generous, compassionate, fair-minded Americans... Have the courage to take action to change that child’s life. You have a choice today… A life-changing and life affirming one. Today, you can set politics, prejudices, and stereotypes aside and… Help create a miracle for a child who has no one else to turn to, but you. Today you can make a real difference. A difference whose ripple effect can be long lasting and bring about a more positive world. CAN MY GIFT HELP? We’ve all heard the cliché that “every dollar makes a difference.” And it does. Every dollar is a priceless gift that shows a child in need that you care about them. That you care what happens to them. Families tell us how grateful they are. How a single dollar made them feel that… They are not alone. Because now they know you care. Your gift creates a snowball effect and something magical happens as it takes on speed. EVERY DOLLAR Creates a miracle for a child. One of your dollars... May be the last dollar needed to give a child life saving American medical care. Every gift helps... A mother and child... Get to board an Airbus 330 international jetliner filled with new found hope for the future. They get nurturing. A warm blanket. And a little extra tender loving care from the flight attendants. The family is exhausted, overwhelmed, frightened as they land in America for the first time. They’re a long way from home... In a completely foreign country... Facing major, life changing surgery. U.S. Customs and Border Protection officials give clearance... For RACF volunteers to greet the mother and child as they come off of the plane. Seeing that someone they can trust is there... As they step off the plane... Gives them an immediate sense of relief and comfort. Tears of gratitude well up in their eyes knowing that they are not alone. They get escorted through passport control. They get help getting their baggage off the carousel. They get a trusted friend walking side by side with them through customs. They get someone who speaks their language as they take their first steps on American soil. There's a car waiting to pick them up that brings them to a comfortable, warm, welcoming home to stay in. The friendly staff at Ronald McDonald House greet them and check them in. They get a comfy bed and lay their head on a soft pillow to rest after the longest journey of their life. They get homemade breakfast and lunch prepared by volunteers. They get delicious dinners prepared by award winning local restaurants. They get the best doctors and nursing staff to treat their child’s condition. They get all their medications, lab tests, medical exams, anesthesia, and medical expenses paid for. They get the complete surgery necessary to cure their child’s condition. JUST LOOK AT ALL YOU ARE DOING FOR THIS CHILD... A child who had no hope. A child who faced a life of disability. A child whose disease could... Rob them of their life before kindergarten. Look at the care they are getting and, most importantly... They are being cured of their condition so they can go on to a live a full, complete life. This trip... thanks to you and your gift... Will not only be an experience they will never forget... But your kindness is something they will carry in their hearts for the rest of their lives. And you get to walk away knowing that you helped save their life.