PHACE SYNDROME COMMUNITY INC

Willow Grove, Pennsylvania, 19090 United States

Mission Statement

Together, we're facing PHACE. We have four main goals: 1. Raise awareness, 2. Support each other, 3. Fund research, and 4. Find a cause and cure.

About This Cause

PHACE Syndrome is the uncommon association between large infantile hemangiomas, usually of the face, and birth defects of the brain, heart, eyes, skin and/or arteries. It is an acronym that stands for the medical names of the parts of the body it often impacts: P – Posterior fossa abnormalities and other structural brain abnormalities H – Hemangioma(s) of the cervical facial region A – Arterial cerebrovascular anomalies C – Cardiac defects, aortic coarctation and other aortic abnormalities E – Eye anomalies

PHACE SYNDROME COMMUNITY INC
Po Box 300
Willow Grove, Pennsylvania 19090
United States
Phone (678) 744-3971​
Unique Identifier 462061070