ASSOCIATION FOR CREATINE DEFICIENCIES
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Mission Statement
The Association for Creatine Deficiencies’ mission is to provide patient, family, and public education, to advocate for early diagnoses, and to promote and fund medical research for treatments and cures for Cerebral Creatine Deficiency Syndromes (CCDS).
About This Cause
The Association for Creatine Deficiencies (ACD) was established in 2012, by parents with children diagnosed with a Cerebral Creatine Deficiency Syndrome (CCDS). Because CCDS mimic symptoms of other medical conditions, patients are often misdiagnosed. Proper diagnosis and early intervention are critical to establish treatments needed to improve life quality and longevity for the CCDS patient. The ACD was established to raise awareness and education of CCDS among the medical community, as well as the general public, and to advocate on behalf of families and patients living with Cerebral Creatine Deficiency Syndromes.