JOUBERT SYNDROME & RELATED DISORDERS FOUNDATION
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Mission Statement
Our mission is to support by Joubert Syndrome and related disorders by providing C.A.R.E. - Connection, Awareness, Research and Education. We aim to create an inclusive community where those affected by Joubert Syndrome and related disorders are empowered through knowledge, support, and hope.
About This Cause
The Joubert Syndrome & Related Disorders Foundation is an international network of parents who share knowledge, experience, and emotional support. The foundation offers a networking list, newsletter, and a biennial conference. The Joubert Syndrome & Related Disorders Foundation plays an important role in educating physicians and their support teams as well as increasing public awareness. The Joubert Syndrome & Related Disorders Foundation is a nonprofit organization.