NATIONAL VULVODYNIA ASSOCIATION
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Mission Statement
The mission of the National Vulvodynia Association (NVA), a non-profit created in 1994, is to help improve the health and quality of life of women suffering from vulvodynia, chronic vulvar pain without an identifiable cause. Subtypes of vulvodynia include provoked vestibulodynia, generalized vulvodynia and clitorodynia. Many sufferers report vulvar burning and painful sexual intercourse. To serve these women (and adolescents) , NVA will: - educate affected women about vulvodynia to enable them to make informed choices about their treatment - encourage patients to develop self-help strategies to deal with the physical and emotional components of this disorder - provide a support network for interested members - involve and educate loved ones to promote a more supportive family environment - coordinate a centralized source of information on suspected causes, current treatments, and ongoing research for health care practitioners and patients - emphasize a coordinated interdisciplinary approach to patients’ medical care - work cooperatively with other health organizations to improve our understanding of vulvodynia’s relationship to other disorders - educate the public to bring attention to vulvodynia as a serious women’s health concern - encourage further research to find more effective treatments and eventual cures for vulvodynia
About This Cause
For more than 20 years, the National Vulvodynia Association (NVA), a nonprofit organization, has been dedicated to improving the health and quality of life for women with vulvodynia, chronic vulvar pain without an identifiable cause, through education, research, support and advocacy. Research studies find that as many as 16 percent of women in the U.S. suffer from vulvodynia at some point in their lives. Sadly, 60 percent of affected women consult three or more doctors before receiving a diagnosis of vulvodynia and 40 percent of women seeking treatment for this condition are not accurately diagnosed after seeing as many as three doctors. We provide needed services for both women with vulvodynia and the health care providers who treat them. Patient resources include self-help guides, tutorials and newsletters to help women learn about the condition and how to cope with its impact on sexual relationships and quality of life. We also offer referral lists of health care providers with expertise in vulvodynia and support contacts for women who would like to talk with other women about the physical symptoms of vulvodynia and related emotional issues. For health care providers, we offer the first and only online CME/CE course on vulvodynia and a newsletter filled with expert articles on vulvodynia’s causes and treatments. In addition, the NVA has awarded over 40 grants to study the potential causes of and treatments for vulvodynia. Our efforts will continue until women with vulvodynia are accurately diagnosed on their first visit to a health care provider and safe and effective treatments for this condition are available.