THE MAST CELL DISEASE SOCIETY, INC.
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Mission Statement
We are dedicated to supporting patients affected by Mastocytosis or Mast Cell Activation Diseases as well as their families, caregivers, and physicians through research, education, and advocacy.
About This Cause
The Mast Cell Disease Society, Inc. (TMS) is a 501(c)3 national rare disease nonprofit organization dedicated to supporting patients affected by mast cell diseases, as well as their families, caregivers, and physicians through research, education, and advocacy. We represent patients affected by cutaneous and systemic mastocytosis and their variants, mast cell activation syndromes, and hereditary alpha-tryptasemia. TMS offers free membership to over 10,000 members, has an active medical advisory board of internationally renowned physician researchers, and allocates funds for outside research to advance our knowledge and understanding of mast cell diseases to lead to better treatment options and a cure. Disease specific patient education and research are the cornerstones of support, leading to new medications and therapeutic options, while paving the way for patients and caregivers to access and receive holistic care with the goal of improvement in both quality of life and survival. TMS was founded in 1995 and has since completed large scale patient research surveys, held biennial conferences as well as local and regional support groups and forums, granted over $500,000 in research grants and facilitated our patients being able to access support and emerging quality care. For years, we have been pioneering the path to increase education and research about these little-known rare diseases and bringing compassion and innovation to our mast cell disease community globally.