LYMEDISEASE ORG
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Mission Statement
LymeDisease.org seeks to make the patient voice stronger, to support patient-centered research, and to create a future where Lyme patients can receive the treatments they need to get well. Its focus is on large scale science-based advocacy, communications and big data research. Founded in 1989, it is one of the oldest, largest, and most trusted sources of patient information on Lyme disease, drawing millions of unique website visitors a year. Its MyLymeData patient registry and research platform has enrolled over 14,000 patients and is among the top 5% of patient-led registries in the nation. Its communications network distributes resources and educates the public about the science of tick-borne diseases via website content, blogs, social media, and an online journal, the Lyme Times
About This Cause
LymeDisease.org is powered by patients. We believe there is strength in numbers. We represent hundreds of thousands of patients and provide them with the tools essential to empowerment. Educated and informed patients are the key to improving health care outcomes. We provide patients with the information that empowers them to make sure that they receive the care they need. True power comes from having informed patients involved in all levels of decision making—from education, to legislation, and even science. Together we amplify the patient voice to drive health care policy change. Through the MyLymeData patient registry, we develop the data necessary to better characterize chronic Lyme disease and to evaluate real world patient outcomes based on the care they receive from their clinicians.