ALS Northwest
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Mission Statement
Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support.
About This Cause
Since its inception in 2002, ALS Northwest, formerly known as The ALS Association Oregon and Southwest Washington Chapter, has been the central source of services and education for people with ALS, their families, caregivers, and healthcare professionals in all of Oregon and the six counties of SW Washington. The progression of ALS varies significantly from one person to another. Responding to each person’s individual needs, our organization is available to provide vital services and reliable information. Outside of funding research and public policy efforts, below is a sampling of local care services provided free of charge: On-staff Care Services Coordinators who offer individual support and home visits to assess the needs of those living with ALS, suggest equipment, connect with local resources, and help families plan for the future. Partnerships in ALS multidisciplinary centers and clinics. Medical Equipment Loan Program that shares equipment to aid in daily living activities and with mobility. Augmentative Communication and Assistive Technology Program to support people living with ALS in their communication, access, and technology needs. Caregiver Support Program to provide help and support including family caregiver support groups, Care Connections guidance, Monthly Support Group Program for people living with ALS, family members, caregivers, and friends. Support and resources for children who have ALS in their families. Counseling Program with referrals to community resources to benefit families interested in accessing professional mental health services. Our ALS Financial Assistance program provides funds to cover some of the high costs associated with the ongoing needs of people living with ALS. Education and Outreach to the health care community, home health care agencies, and the community with updates on current ALS needs and solutions. Our chapter receives no government or insurance funding - we rely solely on our events, corporate and personal gifts, and foundation grants.