THE CHROMOSOME 18 REGISTRY AND RESEARCH SOCIETY
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Mission Statement
Chromosome 18's mission is to help individuals with chromosome 18 abnormalities overcome the obstacles they face, so they may lead healthy and productive lives. Our mission has three facets: building community, expanding education, and advancing research. Our shared vision is that one day, children with chromosome 18 abnormalities will have the same aspirations and achievements in life as their siblings.
About This Cause
Founded in 1990, The Chromosome 18 Registry & Research Society is a registered 501(c)(3) non-profit, tax-exempt public charity dedicated to making chromosome 18 conditions the first treatable chromosome abnormalities. We count within our membership thousands of parents, siblings, extended family and friends, businesses, and affected individuals. Registry membership is open to any interested person. Our work is supported by private donations from members, foundations and charitable organizations, businesses, and others interested in supporting our mission. We use these contributions and gifts to invest in both people and science; supporting our members through education and a sense of community while also focusing squarely on impactful clinical research that will lead to healthier, happier, and more independent lives for those affected and their families. The diagnosis of a Chromosome 18 abnormality means that a child will face an array of medically complex physical and cognitive disabilities during their lifetime and funding and support for these special needs children is critical.