CHILDRENS CRANIOFACIAL ASSOCIATION
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Mission Statement
Children's Craniofacial Association (CCA) has a mission to empower and give hope to individuals and families affected by facial differences. We envision a world where all people are accepted for who they are, not how they look.
About This Cause
Each year, more than 100,000 children in the United States are either born with or develop a craniofacial condition. Their parents and families try to understand what they have and how to help them. Families struggle to cope with the emotional and physical aspects of having a child with a craniofacial anomaly and the social alienation of appearing different. Children's Craniofacial Association (CCA) was founded to help them and today provides the support these children need to lead positive, productive lives. Founded in 1989 and based in Dallas, Texas, CCA is the premier national organization addressing the medical, financial, emotional, psychosocial and educational issues related to craniofacial conditions. Governed by a board of directors, CCA also maintains an honorary medical board made up of craniofacial reconstructive surgeons from across the country and a medical advisory committee composed of specialists who are members of the craniofacial team. These physicians and healthcare specialists are a first source of medical information for patients' families. They also play a vital role in CCA's development of educational materials, fundraising and other supporting activities. What We Do: • Provide a toll-free support line and list of qualified craniofacial centers and physicians • Connect families with others who have family members with like conditions, experiences, and similar diagnoses to create and support networking and lifelong friendships • Conduct workshops and symposiums to educate craniofacial individuals and their families • Conduct kindness education and bullying prevention programs in elementary and middle schools • Offer financial assistance for secondary costs such as food, travel and lodging when traveling out of town for surgery • Publish educational materials for individuals with facial differences and their families, friends and classmates • Advocate on behalf of individuals affected by facial differences to ensure quality care and appropriate healthcare standards • Promote public awareness of craniofacial conditions • Hold an annual weekend retreat for individuals and families affected by facial differences • Provide scholarships to families to attend the Annual Family Retreat & Symposium • Host ccakids.org, ccakids blog, and social media networking sites (facebook, twitter etc.) that connect, educate and support • Fund Medical Research