Axis Advocacy Inc.
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Mission Statement
Axis Advocacy is a grassroots organization focused on education and advocacy for those living with sickle cell disease. We educate, not only the families who deal with this life threatening illness, but the medical industry, where so much conscious and unconscious bias exists towards the predominantly African American community. Our goals are to improve the lives of patients and caregivers who are dealing with this chronic illness.
About This Cause
Axis Advocacy is a 501C3 organization which has uniquely positioned itself to address the needs and deficits in the Sickle Cell Community. SCD is a lifelong inherited red blood cell disorder resulting in pain, suffering, organ damage and early death. 100,000 people in the US are born with SCD, primarily African Americans. Those affected, and their families, bear the burden of living with the effects of this devastating disease; effects driven by racism, poverty, stigma of drug abuse and lack of equity as it relates to care. We advocate and educate from bedsides to government offices for changes needed to reduce needless suffering and stigma, and for the increase of good and equitable services. Axis Advocacy advises many national health organizations (AMA, NIH, CDC, CIRM) on pioneering efforts that now have saved lives. Axis Advocacy has been recognized by the World Stem Cell Summit with their "Stem Cell and Regenerative Medicine Action Award for Inspiration" for their advocacy of Stem Cell Research as the cure for Sickle Cell Disease. Other working relationships include: White Coats for Black Lives American Medical Association American Society of Hematologists Americans for Cures Association of Sickle Cell Nurses California Institute for Regenerative Medicine Cayenne Wellness Center Chronic Care Coalition of California Empowerment Congress of Los Angeles (Health Committee) Huntington Disease Care, University of California, Irvine Los Angeles Thalassemia National Association for Mental Illness National Association of Mental Health National Association of Sickle Cell Disease National Institute of Health Northern Los Angeles Hemophilia Patients Centered Outcome Research Institute, Annual Meeting Power of Voices Rare Disease Day Rare Voices Sick Cells Sickle Cell Consortium Society of Stem Cell Students Southern California Baptist Ministries Southern California Women's Health Expo Stem Cell: California State University, San Bernardino Stem Cell: University of California, Los Angeles Stem Cell: University of San Diego Stem Cell: University of Southern California Student Society for Stem Cell Research The World Stem Cell Organization University of California, Davis University of California, Los Angeles — Stem Cell Conference University of California, San Francisco — Benioff Children's Hospital University of Southern California School of Public Policy University of Southern California Wellness Center Valley Children's Health Care — Hematology and Neuropathy US Sickle Cell Statistics : 100,000 people in the US are born with SCD, primarily African Americans 1 in 365 African - Americans 1 in 16,000 Hispanic-Americans . 1 in 13 Black babies are born with sickle cell trait, the carrier state.