INTERNATIONAL AUTOIMMUNE ENCEPHALITIS SOCIETY
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Mission Statement
International Autoimmune Encephalitis Society (IAES), a 501(c)(3) non-profit organization, is the only Family/Patient-centered organization for people touched by Autoimmune Encephalitis. Known for our leadership role in changing the landscape of the AE community with outstanding advocacy results, IAES assists patients, family members and caregivers in all areas of their journey. Members refer to IAES as "the family I never knew I had" and "Home for the AE Warrior" due to the unparalleled compassion, resources and advocacy services IAES provides. IAES Raises awareness of Autoimmune Encephalitis across the many specialties of medicine that come in contact with these disorders and raising awareness with the public to ensure a timely and accurate diagnosis and aggressive treatment plan for best outcomes. Funds research to lead to a cure of AE.
About This Cause
The International Autoimmune Encephalitis Society, (IAES), assists patients, family members, and caregivers in all areas of their journey. Our Motto is: "Empowering victims of Autoimmune Encephalitis and their caregivers through Support and Education". IAES has created Autoimmune Encephalitis Trivia Cards, an educational and rehabilitation game for patients, medical professionals, and friends to aid in understanding the disease and doubles as a rehabilitation tool. We provide a referral list of expert physicians for accurate diagnosis and treatment. Conduct an online educational support group, direct families on accessing discounted ground and air travel to a Physician for diagnosis, care, or treatment. Provide discounted accommodation information to make out-of-state travel as affordable as possible. Assist and educate in the appeals process to overturn treatment denials from insurance companies. Other services offered are: Financial assistance advice that prevents a family’s bankruptcy or becoming financially destitute from out of pocket expenses due to a medical crisis. Education about medical insurance options that lead to the highest benefits including charity care, guidance on how to keep medical records, and ensure best outcomes when faced with emergency health crises including being placed on Psychiatric holds or commitment. Funds research. Volunteers experienced in the understanding of autoimmune encephalitis assist in crisis management as patient advocates when their help is called upon and is appropriate.