SPOONBILL FOUNDATION
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Mission Statement
Our mission is to discover, develop, and deliver therapeutics for PKAN and all NBIA disorders in partnership with the NBIA community as swiftly as possible and at the lowest cost
About This Cause
Finding a solution for PKAN The Spoonbill Foundation and our sister organization, Stichting Lepelaar, were founded with the goal to discover, develop, and deliver therapeutics for PKAN and all NBIA disorders in partnership with the NBIA community, as swiftly as possible and at the lowest cost. We know PKAN. For 26 years, we have cared for hundreds of people with PKAN, hunted and found the causative gene, discovered key pathologic and biochemical features of the disease, engineered the best animal disease models, and relentlessly pursued rational therapeutics with urgency and purpose. We are global leaders with a strong connection to the PKAN family community worldwide. Together, we are unstoppable. While PKAN is mostly prominently in our sights, we intend to advance therapeutics for all NBIA disorders.