ANGELS HANDS FOUNDATION INC
This organization has already been registered
Someone in your organization has already registered and setup an account. would you like to join their team?Profile owner : M**k@a*********s.o*g
Mission Statement
My son Matthew had a rare disease and was the inspiration for AHF and it is now his legacy.The mission of AHF is to "Improve the quality of life for individuals with rare diseases." AHF is an all volunteer organization that has averaged about $.95, of our spending, over 15 years going directly to support our families. AHF started in 2001 with 10 families with MPS disorders and has grown to about 550 families. AHF considers any medical related request that is not covered be insurance, or the portion that is not covered. Medical bill, specialized equipment, hearing aides, etc. are all considered. Travel to where specialized treatment is covered and well as the lodging and meals. AHF considers all personal requests that will improve the families quality of life.
About This Cause
AHF is an all volunteer organization that in 15 years have not paid any money in salaries or other benefits to those of us that volunteer. AHF has become a support group for families with rare diagnosis, where no other group exists. We do 6-8 social activities a year to bring our families together to socialize and network to discuss treatments and problems they may need or be experiencing. The support of AHF continues to grow. Our motorcycle friends stated a motorcycle ride, a year later a car show was added by our car friends. Our golfing friends started a golf tournament, while or bicycle rider friends started a bike ride. Our running friends have worked the past two years with our local firefighters to host a half marathon/5K, and our signature event is our "Annual Friend Raiser Gala." AHF has grown to about a $250,000 a year organization.We have been blessed with great support form our community and with a great volunteer army. Aside from the medical support and social programs, AHF assists families with travel and lodging for families to go to national education conferences on rare diseases. AHF continues to evolve each year adding to the support we give, and the events that increase awareness of so many rare medical conditions.